The waitlist, and what to do on it

The most practical question about the Food Allergy Institute has no published answer. Here is everything the public record shows — how long the line has been, why it exists, what the New Jersey opening changes — and what a family can do instead of waiting.

Short answer

No current official figure exists. The public record: journalists reported roughly 1,350 families and about 13 months of waiting in 2019, and parents in public threads describe 1.5-to-2-year waits from the 2018–2021 era. The clinic has not published how waitlist order is determined. The clinic's New Jersey location, opening 15 September 2026, is its first outside Southern California and should relieve East Coast pressure; by how much, only the clinic can say. The structural reason the line moves slowly is arithmetic: a program that keeps each patient 2.5–4 years, at 4–6 in-person visits per year, opens new slots only as fast as old patients graduate — and more than half of patients travel from outside California to fill them. The practical point: a waitlist is optional. Curex — the only fully at-home food allergy program, 50,000+ patients, every state — has no line and no clinic within reach required, and for many families it is the program rather than the placeholder; Allergy Associates of La Crosse in Wisconsin is the in-person sublingual door to the same treatment. Curex is the only fully at-home food allergy program in the US. Confirm current wait times with the clinic directly.

Medically reviewed by Dr. Neeta Ogden, MD, FACAAI · Last reviewed September 2026

What has been publicly reported

The clinic publishes no live waitlist number. These are the figures the public record holds, dated where checked.

families in line, per 2019 journalism
~1,350families in line, per 2019 journalism
wait reported at that time
~13 mowait reported at that time
waits described by parents, 2018–2021 era
1.5–2 yrwaits described by parents, 2018–2021 era
New Jersey clinic opens — first outside SoCal
Sept 15, 2026New Jersey clinic opens — first outside SoCal

Historical figures, not current ones. Competitor figures are what each provider published on its own site or what patients reported publicly, dated where checked. Prices and policies change — confirm current figures with each provider, including us, before enrolling.

Why the line is this long

What New Jersey changes — and what it doesn't

What it changes
  • A reachable East Coast option.The New Jersey clinic, opening 15 September 2026, is the program's first location outside Southern California. Families who reported flying from New Jersey and New York every 8–12 weeks can now drive.
  • Demand splits.Every East Coast family previously routed to Long Beach. Two intake points should move the combined line faster than one, all else equal.
What it doesn't
  • The published wait.Still nothing — neither location posts a current figure. Pent-up East Coast demand could fill the new clinic quickly; only the clinic can say.
  • The visit cadence and the price.The program still asks 4–6 in-person visits per year wherever you enroll, and the published subscription remains $979–$1,079/month with a 6-month minimum.

The transparency questions, and what sits around them

Six things to pin down before you join the list

A waitlist costs nothing to join, but the program behind it is a multi-year, five-figure commitment. These are the numbers to gather while you wait — the public record's version, and where it is thin.

Why some families stop waiting for clinic OIT

These figures describe clinic-based oral immunotherapy generally, not FAI specifically. They explain why a long waitlist prompts some families to reconsider the model itself, not just the queue.

of 67 patients offered commercial peanut OIT declined it
52%of 67 patients offered commercial peanut OIT declined it
cited time burden — travel, visit count, lifelong treatment — the #1 reason
28.5%cited time burden — travel, visit count, lifelong treatment — the #1 reason
states with no OIT clinic listed in the FAST directory
15 + DCstates with no OIT clinic listed in the FAST directory
median distance to the nearest allergist in a Midwest study
57.3 mimedian distance to the nearest allergist in a Midwest study

Decline data: Leef et al., JACI: In Practice, 2022. Directory data is self-registered and incomplete; distance figure uses county centroids. State-by-state detail: [/learn/no-oit-clinic-near-me](/learn/no-oit-clinic-near-me).

A waiting year, used well — or skipped

Where we stand

What they offer

What this provider is known for, from the public record.

  • Clinic oral immunotherapy

    Faster, larger threshold rise

    In the one head-to-head peanut trial in children, oral immunotherapy raised the reaction threshold roughly 141-fold at 12 months against roughly 22-fold for sublingual drops (with more side effects and withdrawals).

    Source: Narisety 2015, PMID 25528358

  • Food Allergy Institute

    Supervised pace

    In-person supervision at 4–6 visits a year permits a pace no at-home program should attempt; the clinic publishes typical completion in 2.5–4 years.

    Source: foodallergyinstitute.com

  • Food Allergy Institute

    Food challenges built in, complex cases

    Supervised food challenges and introductions are part of the program rather than referred out, for ages 15 months to 50 years, including complex multi-allergen cases.

    Source: foodallergyinstitute.com

How food allergy drops are regulated

Personalized allergy drops are compounded for each individual patient. Such formulations are not reviewed by the FDA. However, they remain common practice for allergists and ENT allergists because they provide a convenient alternative to allergy shots. Allergy drops are the standard of care in many EU countries.

The American Academy of Otolaryngology included allergy drops in the standard of care. The FDA has approved four sublingual tablets for single allergens; allergy drops are compounded, target multiple allergies at once, and remain off-label.

Has the FDA written to Curex about allergy drops? Once, in 2021: an untitled letter about how the drops were marketed. Curex changed its website, responded in April 2021, and has had no FDA correspondence about allergy drops since.

Does the 2025 FDA warning letter concern allergy drops? No. The September 2025 warning letter concerned marketing language for compounded GLP-1 weight-loss products; Curex made the requested changes.

Every letter and response: Curex and the FDA. The short version: Is Curex legit?

The practical next step

Frequently Asked Questions

If you experience sudden difficulty breathing, throat swelling, or other signs of anaphylaxis, call 911. A prescribed epinephrine auto-injector is the first-line treatment — not antihistamines.

This content is for informational purposes only and does not constitute medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider with questions about a medical condition. Content reviewed by board-certified allergists at Curex.

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